Lenay's Little Heart

Lenay saw her cardiologist this morning.

We were there for about 3 hours.  Luckily I brought lots of snacks! 

She laid very still for her echocardiogram.  I was shocked!  It takes about 25-30 minutes so thats a long time for a 2 year old to sit still.  But they had cartoons on and Mommy was feeding her little princess grapes (literally) so that helped.

She also tolerated her EKG extremely well.  Another shock.  A test that should take a total of one minute usually takes more like twenty along with the help of several adults.  This time, she acted very interested in the whole process, and then even helped to attach and detach the cables when asked!

She's such a big girl.  But I mean come on, she is two now.

Our doctor peeked his head in after he reviewed the tests and told me he needed to get more blood pressures on her.  He wanted pressures on her arms and legs.

She has had elevated blood pressure for a while now, due to the increased pressure gradient in her aorta from the obstruction, and we knew this.

But it dawned on me today that I have never asked what her pressure should be.

Turns out her top number should be right around 100.

And hers is consistently in the 130s.

The good news is that according to the pictures from the echo, her heart is unchanged.  It is no better, but it is no worse.

We thank God for this, because if it was any worse, meaning any thicker, then we would be talking more surgical intervention.

But since it is no worse, we can continue to play the waiting game.

Patience.

And since we are in "uncharted territory" as the doc said today, we can't really know how long it will take.

He is concerned about her pressures, so he prescribed a blood pressure medicine for her today.

She is now on 3 cardiac meds.

We will go back in a week for blood work to see how she is reacting to the new med, and then we will see him again in 2 months to see where we are with her blood pressure at that time.

The funny thing about Lenay is that you would never know she is a heart baby.  I've had several medical professionals read her chart and then tell me they are shocked when they see and observe her.  Because she just doesn't let it get her down.  We could all take a lesson from her. 

I mean just look at her.  Singing and snacking while she waits.

Love you babe.  I am so blessed.